As the next step in his diagnosis plan, Edward had an abdominal MRI. I’d never had an MRI and I didn’t know much about it. Here are a few things I would have liked to know ahead of time (and could have, if I’d done any research):
1. It was LOUD. I mean, I knew it would be loud. The tech said it would be loud, and he gave Edward noise-muting headphones and he gave me ear plugs. But he said it would be “loud.” It would have been significantly more accurate to say that at times it sounds as if the hospital is under attack and using their loudest, highest-emergency alarm system. And that at other times it sounds as if someone is using a machine-gun. And that at other times it sounds as if the machine itself has something seriously, seriously wrong with it. Some noises were so loud and went on for so long, I felt stunned by the noise.
2. Edward had to drink several cups of barium-something beforehand. This was the worst part, as far as he was concerned. It didn’t taste too awful, according to Edward, but the aftertaste was unpleasant. The biggest issue was that there was so MUCH of it. A nice man in the waiting room with us said, “Ug, I’ve had to do that. No fun. And you’re just so FULL: it’s way more than you’d ever normally drink.” Edward finished about half the bottle (which looked like it held about a pint), and then a tech came in and filled it back up almost to the top; that was very discouraging. Edward drank it down to about half-full again and then started gagging hard with every sip. I started panicking: what if he COULDN’T finish it? What if I tried to force him to drink more and he threw it all up and had to start over? And then the tech came to get us for the procedure, and I held up the bottle and said in a fretful, anxious voice, “He didn’t drink it all!,” and the tech said, “Eh, that’s fine.” WHAT.
3. When I booked the appointment, they told me the MRI would take about 30 minutes. As the tech brought us in, he said it would be 60 minutes. It was actually 90 minutes, not counting the long wait in the waiting room. About 60 minutes of that was in-the-machine time, so that is probably what the tech was referring to. (The other 30 was changing into the johnny, setting up the pads and straps and breathing monitor, waiting for the doctor to say if the pictures were good enough or needed to be redone, and getting the contrast dye injected.) I’d been worried he’d have trouble holding still, but they nestled him in pretty securely with pads and straps (he looked cozy and cute, not Strapped Down). He could have moved if he wanted to—but as long as he WANTED to hold still, he wouldn’t have much trouble.
4. There was a Surprise Needle. Toward the end of the MRI, the tech said, “So, now we’re going to put in the contrast dye,” and I had to rapidly explain to Edward what that meant. It went fine, though. The staff changed shifts halfway through the MRI, and the tech who was leaving said the good news was that the tech coming on shift was especially good with kids/needles. And he really was.
5. I was allowed to go into the room with Edward. (I assume this part varies from hospital to hospital and from procedure to procedure.) I was even allowed to keep my glasses on. I’d taken off all my jewelry, my watch, my wedding ring, and I’d taken all the metal out of my pockets, but it turned out that wasn’t necessary for the person NOT going into the machine. When I leaned over to look at the inside of the MRI machine, I felt my glasses starting to be pulled off. They had me sit at the head end of the machine, which was extremely reassuring: I could see enough of Edward (top of his head, eyelashes, upper chest) to know he wasn’t panicking or upset. We could also theoretically hear each other if we needed to: at one point when there was a break in the noise, I said, “Edward! When he says to take a breath and hold it, take a DEEEEEP breath!”
6. If I’d known there would be several times when Edward would need to take a breath and hold it, I would have practiced that with him ahead of time.
7. The machine looked like a jet engine. I was picturing a big silver metal toilet paper tube, but it was more rounded than that on the outside, and white. The tube through the middle was still toilet-paper-tube-like, but also white. That felt less scary to me than silver. There were lights, so it wasn’t dark. Both ends of the machine were open to the air: I’d pictured being ENCLOSED. The end of the machine I was staring at for an hour looked like one of those “smiley faces found on inanimate objects” photos: the lights looked like eyes, and there was a seam that looked like a smile. This photo doesn’t show the smile, but it shows the resemblance to a jet engine:

(photo from en.wikipedia.org)
But I’m not sure knowing all this ahead of time would have helped me prepare Edward. I just had no idea how HE would respond to any of it. Would he panic? Would he be scared? Would it be WORSE or BETTER to know ahead of time that there’d be a needle? Would it be WORSE or BETTER for him to know that some people freak out inside an MRI machine? I was extremely uncertain about the ability of a child to hold still inside a machine for 30 minutes, so it’s probably better I didn’t know it would be 60 minutes. And he did completely fine with it anyway, even with the surprise needle; at this stage of things, I don’t think needles surprise him much anymore.




