I would like to tell you about two housecleaning tasks I did, because in my opinion they are among the grossest and most thankless: I removed the toilet lids/seat unit (we have one like this that’s designed to be easy to remove) and scrubbed it in the tub, getting all the hinge areas that get so gross especially if you live with a lot of people who pee standing up; and I cleaned the small plastic trash can we use to hold the toilet brush and toilet plunger. Then I washed my hands up to my elbows, then I did it again, then I did it a third time, and then I went and lay down for awhile with a fan blowing on me soothingly. But it is so satisfying to have those two areas cleaned, and to think of not having to do it again for awhile.
We have had a new diagnosis in the family for me to fret about. At Elizabeth’s 13-year annual check-up, the pediatrician noticed her spine wasn’t straight, and sent her for x-rays. The pediatrician said sometimes nothing needs to be done other than keeping an eye on it.
But the x-rays came back showing a 30-degree curve, and the pediatrician said she should see a specialist. We had to wait weeks to see the specialist, and then it was for a 5-minute appointment: he shook our hands, tested her reflexes, showed us the x-rays, and said he’s referring her to the spine center of the big-city children’s hospital. He says she will almost certainly need a brace.
Did you read Deenie as a child? I read Deenie. I don’t remember a whole lot about it; it’s lumped together in my mind with a whole bunch of books about teen and pre-teen girls with various issues (The Cat Ate My Gymsuit, Are You There, God? It’s Me, Margaret, The Pistachio Prescription, There’s a Bat in Bunk Five, It’s Not the End of the World, Forever). But I do remember the part about The Brace. That book is probably my only encounter with scoliosis, and it did not leave a good impression of it.
Well. Presumably there have been some advancements since 1973. I am hoping that, as a group, we know something about this and can collect in the comments section the various things we know and have heard, either from our own kids’ experiences, or the experiences of other kids we know or are related to.
So far I have learned that my brother had mild adolescent scoliosis, which I hadn’t remembered at all. My mom remembers it was a 7-degree curve, and nothing had to be done about it; the doctor just kept an eye on it to make sure it didn’t get worse. It hasn’t been an issue.
I have also learned that a 30-degree curve is not great but not the worst; it’s “moderate” as opposed to “mild” or “severe.” I have learned that there are “S-curves” and “C-curves”; Elizabeth’s is an S-curve, so it curves one way and then back the other way. I have learned that the main concern is not the current curve, but rather that Elizabeth is in a rapid growth stage, and that the curve could worsen rapidly during this stage (already it went from nothing at her 12-year check-up to 30 degrees a year later). I’ve lightly learned (that is, I am not sure of this knowledge and don’t yet know how/if it will apply to Elizabeth’s particular situation) that the primary goal of bracing is to prevent FURTHER curving, but that bracing can also in some cases decrease the current curve; I have not learned if this is something they maybe only attempt in more severe situations. (Elizabeth is not having any pain or other ill effects from her current curve.) I’ve turned my eyes away from some of the possible lifetime effects of scoliosis.
I have learned that in the term “adolescent idiopathic scoliosis,” the word “adolescent” refers to when the scoliosis first presented itself, and “idiopathic” means there is no known family history of it and it just came out of nowhere (which is not uncommon for scoliosis) (but my brother DID have mild scoliosis, so I wonder if they’ll change that word after taking a family history). And I’ve learned that scoliosis is more common in children assigned female at birth than in children assigned male, and also tends to be more severe in children assigned female than in children assigned male. They don’t seem to know why, though I haven’t exactly gone rummaging through the scientific journals to see what the current thinking is.
That’s pretty much it. Right now we’re waiting for the children’s hospital to call us to set up her appointment. Adding to my stress is that it’s a DIFFERENT big-city children’s hospital than the one Edward goes to for his Crohn’s disease treatments. It would be so nice if she were going to that same familiar hospital. I’d been planning to call and get the referral changed—but then I did some online searching about how to compare hospitals and which were the best hospitals and so forth, and basically the one Elizabeth has been referred to is one of the highest-ranked children’s hospitals anywhere, and the one Edward goes to is not on the lists.
So. I guess I will think of this as an Opportunity to get familiar with another hospital. I will look on the bright side: it’s a little further away from the city center, so maybe the driving and parking WON’T make me cry! Also: the hospital Edward goes to has TERRIBLE food. Like, remarkably terrible. Like, they must be doing it on purpose. Maybe the new hospital will have better food.


