I was away a day and then sick a day, and boy, there is nothing quite like that to make a person feel that special blend of useful/important (“My goodness, I really DO do a lot around here!”) and resentful (“So, it’s LITERALLY that if I don’t do it no one does??”). It’s also given me a couple of days of morbid-fantasy fretting about how the family would cope if I were incapacitated for longer than a couple of days and also about how I’ll fare in my elder years. Well, sufficient unto the day, etc.
Speaking of sufficient unto the day, we have a diagnosis for Edward. To review before the reveal, he was diagnosed with anemia at age 6 and referred to a pediatric hematologist at age 8. The pediatric hematologist (billing $750 for 20 minutes, which, my dear heaven, my insurance card is now covered in lipstick marks) referred him to the pediatric gastroenterologist. The pediatric gastroenterologist first did an endoscopy/colonoscopy and then an abdominal MRI, with me all pre-embarrassed for how this was all going to turn out to be nothing and look how much trouble and expense we caused for a little anemia issue.
But instead it’s Crohn’s Disease (a disease that can include the entire digestive system from In to Out), and we’re so glad we found out as early as we did: some people find out they have Crohn’s after it’s caused them to miss an important growth spurt, or at the point where they need a large piece of damaged intestine removed. Edward has lost some growth (the anemia was diagnosed after he failed to grow at all between age 5 and age 6), but we hope this nice early treatment will help him not to miss more. The diagnosis explains his anemia, his irregular growth, his tiredness, his picky eating, his low appetite, his stomachaches: Crohn’s can make it difficult to absorb nutrients, and difficult to digest food and to feel good while doing so. Crohn’s is not curable but it’s treatable; he’s started on Pentasa (this is nine capsules a day) and omeprazole, plus two weeks of prednisone, and he’ll likely start on 6-MP at his visit next month.
I don’t know much about Crohn’s at all, though that situation is rapidly changing. Paul got us a book out of the library and it’s causing me to do childbirth breathing. Also, Crohn’s can be quite hereditary, so I’m also worrying about future grandchildren. I’m trying to take to heart Augusten Burroughs’s advice (from This Is How, which I see is currently bargain-priced and which I highly recommend: it’s like having someone ELSE go to three decades of therapy and condense it for you so you don’t have to go), where he says that just because someone has an illness that COULD involve certain things, don’t worry about those things until they happen, because if/when they DO happen, you’ll take it in stride in a way you can’t do when thinking of it ahead of time. OKAY I WILL TRY.







