One of my clients died, and I am not 100% sure I am allowed to say so. The HIPAA training we’ve received is so tight, I’ve wondered if we are even allowed to say we HAVE clients, or if we are supposed to pretend we are secretaries or CIA agents or something. My general feeling about HIPAA is this: if I can tell you some non-embarrassing information about a person, and then even if I gave you a WEEK at gunpoint to find out who I was talking about you couldn’t do it without committing crimes, then probably I am not violating anyone’s privacy.
Anyway, I am not VERY sad, because this was a situation where the end was a mercy sought by all, including the client. But of course I am still some sad. I am also upset because I was planning to go to the funeral [edited to add: I would have gone to the visitation instead, but they’re having only a funeral], and then Paul said he thought that would be really weird. “Maybe if you’d been her full-time caregiver for, like, five years,” he said. And I was going to ask for group input on this, but I realized two things: (1) Paul has already ruined it by planting doubt, despite being a person who didn’t attend his own father’s funeral so maybe I could just dismiss his opinion on this, and (2) I don’t want to hear even one more person confirm his opinion. I would really like it if “going to a funeral” was in pretty much EVERY SINGLE CASE considered a normal, nice, non-weird, routine, CITIZEN OF THIS PLANET thing to do.
I don’t mind if we make exceptions for people who attend in bad faith (wanting to cause a scene, wanting to make others unhappy, not even knowing the person or his/her family but going for the free food, etc.), but high attendance at a funeral is considered a GOOD thing, and low attendance is considered a SAD thing, and I don’t see why it would be weird to attend the funeral of ANYONE I had a connection to, including co-workers, parents of friends, the town librarian, etc. She was my very first client, and I took care of her at least once a week for nearly ten months, and I will be continuing to care for her husband. If I were her husband/children, I think I would be touched to see the caregivers attend the funeral, and it would make me glad because I would think it meant they were actually fond of her and so probably took good care of her when she was alive.
This also brings my job to a crossroads. I have been thinking for awhile that my continuing stress levels after ten months may mean this job is just not a good fit—even though in some ways it is a GREAT fit. Losing this client means changing my schedule again, and my supervisor tried to give me a client who is so out of my league, it gives me a sick feeling to think she’d be willing to send someone so unqualified. The care plan is packed with notes from the nurse about how the person taking this client MUST be able to do X, Y, and Z—all CNA/LNA-trained tasks, none of which I can do. I emailed my supervisor yesterday morning saying so, and she hasn’t replied. The last time I turned down a client, she took it badly, and I am still having occasional imaginary arguments with her in my head about it. I am trying very hard to put into practice the philosophy of this book:
It is helping somewhat, but I am still flinching with anticipation of the email I am likely to eventually receive. I am trying to remember that the ABSOLUTE WORST that can happen is that she can say “You know what, this isn’t working out”—which I AGREE with, but I would be sad to leave one of my clients. The second-worst possible outcome is one that might be the BEST outcome, which would be for me to continue spending three short shifts per week with the one client who is exactly what I had in mind when I sought out this job, and then quit when that client no longer needs me. Despite all this mental coaching, I am still getting a gross feeling every time I hear a “new email” sound. Because the ACTUAL thing I’m worried about is not the practical outcome with regard to the job, but rather the number of things she could say that I will hate and want to argue with.
Breaking news: I just received a completely friendly and good-natured email from my supervisor. Well. This just further demonstrates two things: (1) How very nice it would be to be the sort of person who doesn’t think about bad things until they actually happen, and (2) How VERY MUCH my supervisor influences my job satisfaction, because in one email I went from “I think I’d better quit” to “Sure, I’ll take on those additional shifts!”
[Edited to add: Then she called later, and we had a conversation in which said she was sorry about the mix-up in my schedule: she said hadn’t realized the client I’m literally not qualified to care for was “so much work,” and she referred to the shifts I AM qualified to take as “light, fluffy shifts.” It was subtle but effective: I was left with the impression that I requested the alterations in my schedule to suit my lazy ways, rather than based on whether my skill set was an appropriate/safe match with the client’s needs. So. We’re back to “I think I’d better quit.”]













